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Optic Pathway Glioma



Follow up

After treatment for a optic pathway gliomas (OPGs) there are many chronic health problems to be aware of and to screen for in long-term survivors of this disease:


Example of annual follow up:

Investigation Important aspects:





Neurocognitive testing
  • If there are memory problems, it is important to formally document cognitive impairment in order to obtain vocational or recreational rehab & to apply for a disability pension


Blood work


Radiology screening




Assessment by the following specialists every 1 - 2 years:

  • Endocrinology
  • Ophthalmology or Neuro-ophthalmology


Supportive care
  • Family counselling
  • Psychology
  • Psychiatry




  • Advise about diet, exercise and lifestyle choices (such as smoking) which may further increase the risk of vascular disease.


ACTH Deficiency:

  • During infection, surgery and illness OPG survivors with pituitary dysfunction are very likely to need support with extra steroid medication
  • Medic Alert bracelets are advised to warn about ACTH deficiency


Patient information at Children's Oncology Group long term follow up guidelines:








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