Survivors

 

 

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Late Effects

Psychosocial

 

 

References and Resources

Survivors:

COG Survivorship Guidelines: Emotional issues after childhood cancer

COG Survivorship Guidelines: Educational issues following treatment for childhood cancer

Post-traumatic Stress Disorder (NCI)

Facing Forward: Life After Cancer Treatment (NCI)

Depression (NCI)

United States: 

Cancer Legal Resource Center

The cancer information network

 

HCP:

Post-traumatic Stress Disorder (NCI)

Depression (NCI)

 

 

References

1. Hudson MM, Mertens AC, Yasui Y, et al. Health status of adult long-term survivors of childhood cancer: A report from the childhood cancer survivor study. JAMA. 2003;290:1583-1592.

2. Zeltzer LK, Lu Q, Leisenring W, et al. Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: A report from the childhood cancer survivor study. Cancer Epidemiology, Biomarkers & Prevention. 2008;17:435-446.

3. McDougall J, Tsonis M. Quality of life in survivors of childhood cancer: A systematic review of the literature (2001-2008). Supportive Care in Cancer. 2009;17:1231-1246.

4. Speechley KN, Barrera M, Shaw AK, Morrison HI, Maunsell E. Health-related quality of life among child and adolescent survivors of childhood cancer. Journal of Clinical Oncology. 2006;24:2536-2543.

5. De Clercq B, De Fruyt F, Koot HM, Benoit Y. Quality of life in children surviving cancer: A personality and multi-informant perspective. Journal of Pediatric psychology. 2004;29:579-590.

6. Pemberger S, Jagsch R, Frey E, et al. Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being. Supportive Care in Cancer. 2005;13:49-56.

7. Shankar S, Robison L, Jenney ME, et al. Health-related quality of life in young survivors of childhood cancer using the Minneapolis-Manchester quality of life-youth form. Pediatrics. 2005;115:435-442.

8. Zeltzer LK, Recklitis C, Buchbinder D, et al. Psychological status in childhood cancer survivors: A report from the childhood cancer survivor study. Journal of Clinical Oncology. 2009;27:2396-2404.

9. Nagarajan R, Clohisy DR, Neglia JP, et al. Function and quality-of-life of survivors of pelvic and lower extremity osteosarcoma and ewing's sarcoma: The childhood cancer survivor study. British Journal of Cancer. 2004;91:1858-1865.

10. Ness KK, Gurney JG, Zeltzer LK, et al. The impact of limitations in physical, executive, and emotional function on health-related quality of life among adult survivors of childhood cancer: A report from the childhood cancer survivor study. Archives of Physical Medicine and Rehabilitation. 2008;89:128-136.

11. Zebrack BJ, Gurney JG, Oeffinger K, et al. Psychological outcomes in long-term survivors of childhood brain cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology. 2004;22:999-1006.

12. Zebrack BJ, Chesler MA. Quality of life in childhood cancer survivors. Psycho-oncology JID - 9214524. 2002;11:132-141.

13. Eiser C, Jenney ME. Measuring symptomatic benefit and quality of life in paediatric oncology. British Journal of Cancer. 1996;73:1313-1316.

14. Fuemmeler BF, Elkin TD, Mullins LL. Survivors of childhood brain tumors: Behavioral, emotional, and social adjustment. Clinical Psychology Review. 2002;22:547-585.

15. Barakat LP, Kazak AE, Meadows AT, Casey R, Meeske K, Stuber ML. Families surviving childhood cancer: A comparison of posttraumatic stress symptoms with families of healthy children. Journal of Pediatric Psychology. 1997;22:843-859.

16. Hobbie WL, Stuber M, Meeske K, et al. Symptoms of posttraumatic stress in young adult survivors of childhood cancer. Journal of Clinical. 2000;18:4060-4066.

17. Kazak AE, Barakat LP, Meeske K, et al. Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. Journal of Consulting and Clinical Psychology. 1997;65:120-129.

18. Langeveld NE, Grootenhuis MA, Voute PA, de Haan RJ. Posttraumatic stress symptoms in adult survivors of childhood cancer. Pediatric Blood & Cancer. 2004;42:604-610.

19. Lee YL, Santacroce SJ. Posttraumatic stress in long-term young adult survivors of childhood cancer: A questionnaire survey. International Journal of Nursing Studies. 2007;44:1406-1417.

20. Rourke MT, Hobbie WL, Schwartz L, Kazak AE. Posttraumatic stress disorder (PTSD) in young adult survivors of childhood cancer. Pediatric Blood & Cancer. 2007;49:177-182.

21. Schrag NM, McKeown RE, Jackson KL, Cuffe SP, Neuberg RW. Stress-related mental disorders in childhood cancer survivors. Pediatric Blood & Cancer. 2008;50:98-103.

22. Stuber ML, Kazak AE, Meeske K, et al. Predictors of posttraumatic stress symptoms in childhood cancer survivors. Pediatrics. 1997;100:958-964.

23. Sands S, Pasichow KP. Psychological and social impact of being a pediatric brain tumor survivor. In: Goldman S, Turner CD, eds. Late Effects of Treatment for Brain Tumors. NY: Springer; 2009:297-307.

24. Recklitis CJ, Diller LR, Li X, Najita J, Robison LL, Zeltzer L. Suicide ideation in adult survivors of childhood cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology. 2010;28:655-661.

25. Ross L, Johansen C, Dalton SO, et al. Psychiatric hospitalizations among survivors of cancer in childhood or adolescence. The New England Journal of Medicine. 2003;349:650-657.

26. Moore T, Wagner S. Caregiver and family issues for brain tumor survivors. In: Goldman S, Turner CD, eds. Late Effects of Treatment for Brain Tumors. NY: Springer; 2009:331-339.

27. Barrera M, Shaw AK, Speechley KN, Maunsell E, Pogany L. Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer. 2005;104:1751-1760.

28. Stam H, Grootenhuis MA, Last BF. The course of life of survivors of childhood cancer. Psycho-oncology. 2005;14:227-238.

29. Frobisher C, Lancashire ER, Winter DL, Jenkinson HC, Hawkins MM. Long-term population-based marriage rates among adult survivors of childhood cancer in britain. International Journal of Cancer. 2007;121:846-855.

30. Gurney JG, Krull KR, Kadan-Lottick N, et al. Social outcomes in the childhood cancer survivor study cohort. Journal of Clinical Oncology. 2009;27:2390-2395.

31. Frobisher C, Lancashire ER, Winter DL, Taylor AJ, Reulen RC, Hawkins MM. Long-term population-based divorce rates among adult survivors of childhood cancer in britain. Pediatric Blood & Cancer. 2010;54:116-122.

32. van Dijk EM, van Dulmen-den Broeder E, Kaspers GJL, van Dam EW, Braam KI, Huisman J. Psychosexual functioning of childhood cancer survivors. Psycho-oncology. 2008;17:506-511.

33. Haupt R, Fears TR, Robison LL, et al. Educational attainment in long-term survivors of childhood acute lymphoblastic leukemia. JAMA. 1995;272:1427-1432.

34. Mitby PA, Robison LL, Whitton JA, et al. Utilization of special education services and educational attainment among long-term survivors of childhood cancer: A report from the childhood cancer survivor study. Cancer. 2003;97:1115-1126.

35. Boydell KM, Stasiulis E, Greenberg M, Greenberg C, Spiegler B. I'll show them: The social construction of (in)competence in survivors of childhood brain tumors. Journal of Pediatric Oncology Nursing. 2008;25:164-174.

36. Harila-Saari AH, Lahteenmaki PM, Pukkala E, Kyyronen P, Lanning M, Sankila R. Scholastic achievements of childhood leukemia patients: A nationwide, register-based study. Journal of Clinical Oncology. 2007;25:3518-3524.

37. Kelaghan J, Myers MH, Mulvihill JJ, et al. Educational achievement of long-term survivors of childhood and adolescent cancer. Medical and Pediatric Oncology. 1988;16:320-326.

38. Koch SV, Kejs AM, Engholm G, Johansen C, Schmiegelow K. Educational attainment among survivors of childhood cancer: A population-based cohort study in denmark. British Journal of Cancer. 2004;91:923-928.

39. Lahteenmaki PM, Harila-Saari A, Pukkala EI, Kyyronen P, Salmi TT, Sankila R. Scholastic achievements of children with brain tumors at the end of comprehensive education: A nationwide, register-based study. Neurology. 2007;69:296-305.

40. Lancashire ER, Frobisher C, Reulen RC, Winter DL, Glaser A, Hawkins MM. Educational attainment among adult survivors of childhood cancer in great britain: A population-based cohort study. Journal of the National Cancer Institute. 2010;102:254-270.

41. Langeveld NE, Ubbink MC, Last BF, Grootenhuis MA, Voute PA, De Haan RJ. Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the netherlands. Psycho-oncology. 2003;12:213-225.

42. Lorenzi M, McMillan AJ, Siegel LS, et al. Educational outcomes among survivors of childhood cancer in British Columbia, Canada: Report of the Childhood/Adolescent/Young adult cancer survivors (CAYACS) program. Cancer. 2009;115:2234-2245.

43. de Boer AG, Verbeek JH, van Dijk FJ. Adult survivors of childhood cancer and unemployment: A metaanalysis. Cancer. 2006;107:1-11.

44. Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med. 2006;355:1572.

45. Nathan PC, Ness KK, Greenberg ML, et al. Health-related quality of life in adult survivors of childhood wilms tumor or neuroblastoma: A report from the childhood cancer survivor study. Pediatric Blood & Cancer. 2007;49:704-715.

46. Olson R, Hung G, Bobinski MA, Goddard K. Prospective evaluation of legal difficulties and quality of life in adult survivors of childhood cancer. Pediatric Blood & Cancer. 2011;56:439-443.

 

 

 

 

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