Non-Pain Symptoms
Anorexia:
Anorexia refers to loss of appetite.
It is a common symptom during the end of life in most children with a life limiting disease.
Treatment of reversible conditions (including pain, nausea, constipation, drug side effects, depression, esophagitis and gastritis) and presentation of small, tasty meals may improve intake(3).
Feeding issues that can increase the risk of aspiration and gastroesophageal reflux are common issues in children with life limiting conditions at different stages of the disease
Nasogastric tubes for short time or percutaneous endoscopic gastrostomy (PEG) for long term are recommended depending on the child's clinical condition and circumstances.