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Late Effects






National Cancer Institute: Late Effects of Treatment for Childhood Cancer (HCP)

National Cancer Institute: Radiation Epidemiology Branch


Late Effects of Childhood Cancer - by Hamish Wallace and Daniel Green

Survivors of Childhood and Adolescent Cancer: A Multidisciplinary Approach by Cindy L. Schwartz, Wendy L. Hobbie, Louis S. Constine, and Kathleen S. Ruccione


Survivors and HCPs:


National Coalition for Cancer Survivorship

Children's Oncology Group long term follow-Up guidelines for survivors of childhood, adolescent and young adult cancers.

These guidelines were developed as a collaborative effort of the Nursing Discipline and the Late Effects Committee and are maintained and updated by the Children’s Oncology Group’s Long-Term Follow-Up Guidelines Core Committee and its associated Task Forces.

National Cancer Institute: www.cancer.gov

National Cancer Institute: Late Effects of Treatment for Childhood Cancer

American Society of Clinical Oncology (ASCO) Survivorship

American Cancer Society:  www.cancer.org

Association of Cancer Online Resources:  www.acor.org

Cancer Hope Network:  www.cancerhopenetwork.org

Cancer Survivors Network:  www.acscsn.org

Candlelighters Childhood Cancer Foundation:  www.candlelighters.org



Brain Tumors:

Brain Tumour Foundation for Children, Inc:  www.braintumorkids.org

Brain Tumour Foundation of Canada:  www.braintumour.ca

Childhood Brain Tumor Foundation: www.childhoodbraintumor.org

Children’s Brain Tumor Foundation: www.cbtf.org

The Healing Exchange Brain Trust: www.braintrust.org

The International Brain Tumour Alliance: www.theibta.org

Pediatric Brain Tumor Foundation of the United States: www.pbtfus.org

Pediatric Low-Grade Astroctyoma Foundation: www.fightplga.org

Pituitary Network Association: www.pituitary.org



Children’s Hospice International: www.chionline.org



CureSearch: www.curesearch.org


Supportive Care:

Cancer Care. Inc:  www.cancercare.org

Caregiver.com:  www.caregiver.com

Family Caregiver Alliance: www.caregiver.org

Gilda’s Club Worldwide: www.gildasclub.org

Group Loop: www.grouploop.org

Imerman Angels

Lance Armstrong Foundation: www.livestrong.org

National Children’s Cancer Society: www.nationalchildrenscancersociety.org

National Coalition for Cancer Survivorship: www.canceradvocacy.org

People Living with Cancer: www.plwc.org

Survivor Alert

The Wellness Community: www.thewellnesscommunity.org


Young Adults:

Young Adult Cancer Canada

Planet Cancer

International Charter of Rights for young people with cancer


Books for Patients:

"PlanetCancer" by Heidi Schultz Adams and Christopher Schultz

"Crazy, Sexy Cancer" by Kris Carr

"Everything Changes: The Insider's Guide to Cancer in Your 20s and 30s" by Kairol Rosenthal

"Hope Begins in the Dark" by Jamie Reno

"Keep Climbing: How I Beat Cancer and Reached the Top of the World," by Sean Swarner


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