Resources
General:
HCPs:
National Cancer Institute: Late Effects of Treatment for Childhood Cancer (HCP)
National Cancer Institute: Radiation Epidemiology Branch
Late Effects of Childhood Cancer - by Hamish Wallace and Daniel Green
Survivors of Childhood and Adolescent Cancer: A Multidisciplinary Approach by Cindy L. Schwartz, Wendy L. Hobbie, Louis S. Constine, and Kathleen S. Ruccione
Survivors and HCPs:
National Coalition for Cancer Survivorship
These guidelines were developed as a collaborative effort of the Nursing Discipline and the Late Effects Committee and are maintained and updated by the Children’s Oncology Group’s Long-Term Follow-Up Guidelines Core Committee and its associated Task Forces.
National Cancer Institute: www.cancer.gov
National Cancer Institute: Late Effects of Treatment for Childhood Cancer
American Society of Clinical Oncology (ASCO) Survivorship
American Cancer Society: www.cancer.org
Association of Cancer Online Resources: www.acor.org
Cancer Hope Network: www.cancerhopenetwork.org
Cancer Survivors Network: www.acscsn.org
Candlelighters Childhood Cancer Foundation: www.candlelighters.org
Brain Tumors:
Brain Tumour Foundation for Children, Inc: www.braintumorkids.org
Brain Tumour Foundation of Canada: www.braintumour.ca
Childhood Brain Tumor Foundation: www.childhoodbraintumor.org
Children’s Brain Tumor Foundation: www.cbtf.org
The Healing Exchange Brain Trust: www.braintrust.org
The International Brain Tumour Alliance: www.theibta.org
Pediatric Brain Tumor Foundation of the United States: www.pbtfus.org
Pediatric Low-Grade Astroctyoma Foundation: www.fightplga.org
Pituitary Network Association: www.pituitary.org
Hospice:
Children’s Hospice International: www.chionline.org
Research
CureSearch: www.curesearch.org
Supportive Care:
Cancer Care. Inc: www.cancercare.org
Caregiver.com: www.caregiver.com
Family Caregiver Alliance: www.caregiver.org
Gilda’s Club Worldwide: www.gildasclub.org
Group Loop: www.grouploop.org
Lance Armstrong Foundation: www.livestrong.org
National Children’s Cancer Society: www.nationalchildrenscancersociety.org
National Coalition for Cancer Survivorship: www.canceradvocacy.org
People Living with Cancer: www.plwc.org
The Wellness Community: www.thewellnesscommunity.org
Young Adults:
International Charter of Rights for young people with cancer
Books for Patients:
"PlanetCancer" by Heidi Schultz Adams and Christopher Schultz
"Crazy, Sexy Cancer" by Kris Carr
"Everything Changes: The Insider's Guide to Cancer in Your 20s and 30s" by Kairol Rosenthal
"Hope Begins in the Dark" by Jamie Reno
"Keep Climbing: How I Beat Cancer and Reached the Top of the World," by Sean Swarner
